About
The International Noma Federation is a network of actors involved in the fight against noma disease worldwide, which has existed since 2003.
Our mission
The aim of the Federation is to encourage the actors concerned with noma disease to join the association in order to strengthen the fight against this disease worldwide, foster collaboration among its members and encourage advocacy.
Our vision
The Federation defends values of humanity and solidarity. Its members work in international contexts, fighting against a disease that mainly affects children in vulnerable situations. Expertise and commitment are essential to progress in the field of noma, a complex and multifactorial disease.
The Federation firmly believes that cooperation and communication between its members creates synergies and strengthens the fight against this disease.
Our story
After more than 20 years of existence, the Federation is taking a new turn. In 2025, it revised its statutes in depth and changed its name to the International Noma Federation.
In March 2002, Winds of Hope, a humanitarian foundation, organized a first round table to bring together and coordinate the efforts of the field actors involved in the fight against noma. On 20 March 2003, the International NoNoma Federation was born in Geneva, bringing together 17 members determined to join forces to increase their chances of eliminating this neglected disease.
What we Do
Our intervention areas
People affected by noma are at the heart of the interventions of the members of the International Noma Federation.
The federation brings together organizations that work directly in the countries affected by the disease to provide medical, surgical or psycho-social care to children. As noma is still a relatively unknown disease, academic research is essential to advance the fight against the disease, and institutions involved in research are also members of the Federation. Finally, improving the knowledge of the disease among the population and health professionals in the countries where it is present is essential to prevent it, detect it early and thus avoid deaths and facial sequelae. Fighting against noma is also a matter of children’s rights and human rights, which is why the federation and its members are also active in advocacy, to attract the attention of the main donors and influence public health policies.
WHERE WE ARE
Today, the Federation has nearly 30 members who collaborate to develop local and international synergies by promoting common values. These organizations are based in Africa, Europe and America and cover 21 african countries with their interventions.
Ethical Criteria
The actions of the different members of the Federation are always for the benefit of people affected by noma.
Members participate in the life of the Federation in a spirit of collaboration and solidarity.
The efforts of the members aim to create synergies between the areas of action such as prevention, awareness-raising, care, research and advocacy.
Information and communication between members are fundamental.
Medical care
Provide care for children in the acute phase of noma and long-term medical follow-up
Surgery
Provide access to reconstructive facial surgery for patients and train the next generation of surgeons.
Social Care
Provide psycho-social support for patients, including education, training and empowerment.
Prevention and awareness
Inform and train on prevention and early detection of the disease.
Research
Develop academic research on the disease.
Advocacy
Improve the consideration of the disease in global health policies and in the funding of its fight.
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Email: info@noma-federation.org